Technology from self-monitoring devices like insulin pumps and cgm can contribute to a significantly better regulation of blood glucose by using a data-driven diabetes management approach. Unfortunately, the services today do not support the personal data rights of individuals regarding data portability and interoperability and they are far from being transparent. As a result, this new digital health data is still rarely utilised in the ongoing consultation between users of healthcare and healthcare professionals. However, sharing this data with doctors, researchers and others is indispensable for success.
Diabetes Services has received funding from NGI Trust for the project MyPCH which will promote a standardised way of sharing health data in a fair, secure and traceable way in the Danish diabetes eco-system. The solution will be open source and it will empower individuals in their right to obtain and share their own personal data in a self-determined and consensus-based manner based on MyData principles.