On 29 July 2020, Diabetes Services was awarded the status of MyData Operator 2020. The award was given to 16 world-leading organisations from 12 countries, all working for human-centric approaches to personal data and data ecosystems designed to benefit and empower the data providers themselves.
Personal data is extremely valuable. For business purposes, general research and statistics. However, the value often does not benefit the people providing the actual data. From the onset, it has been a key objective of Diabetes Services to take a different approach.
“Being awarded the status of MyData Operator 2020 is a testament to that effort and a great recognition of our operation of human-centric infrastructure for personal data management and sharing,” says Jan Leindals, MSc in Engineering and founder of Diabetes Services.
“We want to gather various health and lifestyle data of individuals with diabetes and make it available for them to use. Either personally or easily and securely share it with healthcare professionals or value-adding third parties of their choice to obtain a better understanding of the disease or to receive better treatment and medication. Ultimately, of course, to improve the quality of life with diabetes,” he explains.
An open data ecosystem
The sharing happens via an open and secure data ecosystem, which Diabetes Services is helping to build and contributing to with data collected from a range of digital sources like smartphones, medical devices and personal wearables with the user’s permission. The ecosystem links individuals, healthcare, business and society and facilitates free movement of data.
In future, the ecosystem may also enable groups of people with diabetes to utilise their data based on a royalty model that allows them to benefit financially in various ways from their essential contribution.
About the award
The MyData Operator 2020 Award was created by the internationally recognised non-profit MyData Global. The award acknowledges organisations that place the individual at the centre of personal data, provide tools to help them manage personal data, and have the individual as the primary beneficiary of the use of this data.